Biggest Mistakes Most Multiple Sclerosis Patients Make

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Quitting Multiple Sclerosis Treatment:Disease-modifying drugs for multiple Sclerosis are meant to be taken long-term. Some Multiple Sclerosis patients quit taking them due to unrealistic expectations or unpleasant (but manageable) side effects. Yet sticking with treatment is the best way to slow the disease. If you have concerns, talk with your doctor, but don’t just stop your treatment.

Delaying Disease-Modifying Drugs:Disease-modifying drugs (injections: Avonex, Betaseron, Copaxone, Extavia, Rebif; oral: Aubagio, Gilenya, Tecfidera) may reduce multiple Sclerosis flares and decrease worsening of the disease. But some Multiple Sclerosis patients put off starting these powerful medications because they fear injections or worry about side effects and costs. Yet, the best clinical research has proven these drugs are most helpful early in the disease.

Not Opening Up to Your Doctor:Some people hesitate to bring up sensitive issues—such as problems with bladder control, forgetfulness, or depression—at doctor visits. Remember that other multiple Sclerosis patients also have these concerns. Your doctor has successfully managed these same problems for them, and can suggest effective strategies to help you. But first, you have to share what’s on your mind.

Ceasing Physical Activity:multiple Sclerosis may sap your energy or limit certain physical activities, but it’s vitally important to keep moving. Regular physical activity improves your overall health, stamina, and mood. Plus, it helps manage MS symptoms such as fatigue, weakness, and tight muscles. Ask your doctor about the best exercise plan for you.

Letting Stress Get Out of Control:multiple Sclerosis can be a difficult, unpredictable disease.Multiple Sclerosis patients can’t always avoid stress. they can control how they respond to it. Proven stress-busters include yoga, meditation, exercise, positive thinking, and time with family and friends. Support groups and counseling may help, as well.

Refusing to Use a Mobility Aid:Multiple Sclerosis patients resist using a cane, walker, or scooter when needed, viewing it as a sign of disability. Using a mobility aid actually helps you maximize your abilities while preventing accidental injuries. It gets you where you want to go while saving energy, so you can be more active once you arrive.

Putting Off Home Modifications:Don’t wait until you’re struggling to adapt your home for MS. By modifying your home now, you can save energy, boost comfort, avoid falls, and stay more independent.Examples of helpful changes include good lighting, smooth nonskid flooring, grab bars, and easy-to-reach storage. Consult an occupational therapist for personalized suggestions.

Using Multiple Pharmacies:This is also the big mistake of Multiple Sclerosis Patients”If you go to multiple pharmacies, they can’t screen for drug interactions,” Grissinger says, because they won’t have a complete list of all the medications you are on, as a single pharmacy is likely to keep in its computer. If you use your HMO’s ground pharmacy and also use its mail-order service, each may not have a list of the medications filled at the other, he says.

Not Taking Medications as Directed:the common mistake made by the Multiple Sclerosis patients When medicine is prescribed, Jenkins says, ask your doctor if there is a way to take the medicine less often during the day, such as switching to a higher dose or a different medicine that doesn’t require as many doses.While some forget to take medicines, others overdo, says Bates. “Too much of a drug gets people into trouble,” he says. And that includes over-the-counter preparations. “People will not get enough relief and will take more thinking it will be helpful.” Often, it spells trouble, he says.

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